Table 4

Top 10 national priorities for research in adult congenital heart disease (CHD)

RankPriority for research
1How can less invasive interventions be performed for CHD with the same outcomes as open-heart surgery?
2How can the longevity of the Fontan circulation be prolonged and the impact of complications (eg, liver, protein-losing enteropathy, renal, endocrine, fertility) be reduced?
3What is the impact of living with CHD on mental health in adults and how can this be improved through access to psychological support and other therapies?
4How can technology be used to deliver personalised care and improve outcomes of those with CHD (eg, artificial intelligence, 3D printing, genomics, stem cells, organ regeneration)?
5What are the risks and limitations associated with pregnancy, childbirth and motherhood for women with CHD, and what information and support is available?
6What are the best treatment strategies for heart failure in adults with CHD, in particular those with a systemic right ventricle?
7How can the management of arrhythmias, including sudden cardiac death, in adults with CHD be improved?
8How can the indications, timing of referral and outcomes of transplantation and long-term mechanical support in adults with CHD be improved?
9What is the impact of living with CHD on quality of life in adults and how can this be improved?
10How can the frequency or need for reoperations be reduced for people with CHD (eg, improved valve/conduit longevity or that grow with the patient)?