Top 10 research priorities from the final workshop
Research priority | Group (patients, carers or healthcare professionals) whose survey responses were incorporated into this research question | |
1. | Which treatments have the biggest impact on the quality of life of people with advanced HF? | Patients |
2. | What amount and type of exercise is safe and effective for people with advanced HF? | Patients and healthcare professionals |
3. | What is the most empowering and effective education and self-management advice for people with advanced HF and their carers? (eg, dealing with fatigue) | Patients, carers and healthcare professionals |
4. | How can the work of HF charities be better integrated with NHS services to optimise the care of people with advanced HF? | Patients |
5. | Which approaches, in addition to standard therapies, are effective in supporting breathlessness in people with advanced HF? | Healthcare professionals |
6. | How do we break down barriers for patients with advanced HF, carers and health professionals to enable talking about end of life care? | Patients, carers and healthcare professionals |
7. | What are the benefits of asking a person with advanced HF ‘what is important to you’? | Healthcare professionals |
8. | What is the most effective way to use diuretics in advanced HF, with respect to fluid overload, kidney function, survival and quality of life? | Healthcare professionals |
9. | How can patients with advanced HF and professionals be helped to communicate about symptoms that are difficult to express such as anxiety and low mood? | Patients and healthcare professionals |
10. | What support would be most effective for carers of people with advanced HF? (eg, support groups) | Patients and healthcare professionals |
HF, heart failure.