Patient/respondent characteristics
| Total (n=73) | Adult patients (n=62) | Parents of paediatric patients (n=11) | |
| Age at survey (years) | 36.3 (18.5–56.7) | 34.7 (18.5–47.6) | 46.2 (32.7–56.7)* |
| Patient age at surgery (years) | 25.7 (0.1–40.0) | 28.1 (12.2–40.0) | 8.6 (0.1–15.2)† |
| Time from surgery to survey (years) | 6.6 (1.1–10.1) | 7.3 (1.1–10.1) | 4.6 (1.1–9.3) |
| Surgery | |||
| Aortic valve surgery | 59% (43) | 58% (36) | 64% (7)† |
| Pulmonary valve surgery | 41% (30) | 42% (26) | 36% (4)† |
| Education level | |||
| None/elementary | 8% (6) | 8% (5) | 9% (1) |
| Lower secondary or vocational | 5% (4) | 5% (3) | 9% (1) |
| Higher secondary | 58% (42) | 61% (38) | 36% (4) |
| Higher professional | 18% (13) | 18% (11) | 18% (2) |
| University | 11% (8) | 8% (5) | 27% (3) |
Data presented as median (range) or percentage (count). Data on parents of paediatric patients concerns the parents, unless indicated otherwise.
*Concerns age of parents, children were 12.9 years (range: 7.7–24.5) of age at the time of survey.
†Concerns children.