Characteristics of included studies focusing on inherited heart disease (N=12)
| Study characteristic | n (%) |
| Setting | |
| North America | 7 (58) |
| Europe | 2 (17) |
| Asia | 2 (17) |
| Not specified | 1 (8) |
| Year of publication | |
| 2000–2004 | 1 (8) |
| 2005–2008 | 2 (17) |
| 2009–2012 | 1 (8) |
| 2013-October 2016 | 8 (67) |
| Publication lag | |
| 1–2 years | 2 (17) |
| 3–5 years | 8 (67) |
| 6–9 years | 1 (8) |
| Not specified | 1 (8) |
| Inherited heart disease(s) of interest* | |
| Marfan syndrome | 7 (41) |
| Hypertrophic cardiomyopathy | 5 (29) |
| Arrhythmogenic right ventricular cardiomyopathy | 1 (6) |
| Brugada syndrome | 1 (6) |
| Catecholaminergic polymorphic ventricular tachycardia | 1 (6) |
| Left ventricular non-compaction | 1 (6) |
| Long QT syndrome | 1 (6) |
| Data source(s)† | |
| Hospitalisation data | 8 (62) |
| Health insurance | 3 (23) |
| Medical records | 2 (15) |
| Data coverage | |
| National | 9 (75) |
| Single jurisdiction | 2 (17) |
| Not specified | 1 (8) |
*One paper defined six inherited heart diseases (denominator=17).
†One paper used two data sources (denominator=13).