Survey respondents (N=54) | Interviewees (N=16) | |
---|---|---|
Gender | ||
Female | 18 (33%) | 7 (44%) |
Male | 36 (67%) | 9 (56%) |
Age (range) | 55.9 (26–87) | 52.4 (28–68) |
Time since recommendations to restrict athletic activity (years) | ||
<1 | 3 (6%) | 0 (0%) |
1–5 | 17 (31%) | 5 (31%) |
6–10 | 12 (22%) | 6 (38%) |
11–15 | 3 (6%) | 1 (6%) |
16–20 | 4 (7%) | 4 (25%) |
Self-identified, before diagnosis, as | ||
Athlete | 23 (43%) | 9 (56%) |
Active individual | 46 (85%) | 13 (81%) |
Psychological difficulty | 29 (54%) | 16 (100%) |
ICD | n/a | 6 (38%) |
Family history | ||
HCM | n/a | 7 (44%) |
SCD | n/a | 2 (12%) |
Suspicious history | n/a | 4 (25%) |
Unremarkable | n/a | 5 (31%) |
Data expressed as n (%) or mean (range).
Family history at diagnosis; HCM, hypertrophic cardiomyopathy; ICD, implantable cardioverter defibrillator; SCD, sudden cardiac death.