Table 1

Survey respondent and interviewee demographics and characteristics

Survey respondents (N=54)Interviewees (N=16)
Gender
 Female18 (33%)7 (44%)
 Male36 (67%)9 (56%)
Age (range)55.9 (26–87)52.4 (28–68)
Time since recommendations to restrict athletic activity (years)
 <13 (6%)0 (0%)
 1–517 (31%)5 (31%)
 6–1012 (22%)6 (38%)
 11–153 (6%)1 (6%)
 16–204 (7%)4 (25%)
Self-identified, before diagnosis, as
 Athlete23 (43%)9 (56%)
 Active individual46 (85%)13 (81%)
Psychological difficulty29 (54%)16 (100%)
ICDn/a6 (38%)
Family history
 HCMn/a7 (44%)
 SCDn/a2 (12%)
 Suspicious historyn/a4 (25%)
 Unremarkablen/a5 (31%)
  • Data expressed as n (%) or mean (range).

  • Family history at diagnosis; HCM, hypertrophic cardiomyopathy; ICD, implantable cardioverter defibrillator; SCD, sudden cardiac death.